"What if I fail?" That's the 2nd thought that rushed my mind as the idea for Project SAS 10 came to me. The 1st thought was this - "I want my life to have purpose and meaning outside of my circle. I want to be able to leave this earth someday knowing that I made a difference! Hoping that there will be people in this world who laughed more, hoped more, and lived better because I decided to step out and be brave." After all, these things have all been bestowed to me by caring people, and I desire to deliver to others that same life changing HOPE! Prayer for change is common. We have the power to create change, and I think we are all the answer to someone's prayer.
Though I got the idea for Project SAS 10 in late 2016/early 2017 it wasn't until May of 2017 that I officially announced the Project - just in time for Scoliosis Awareness Month in June. I committed to provide 10 Scoliosis Activity Suits to patients in need as I saved and raised funds. I estimated it to take several years to provide the 10 suits.
Well, I stepped out in faith and others have joined me to provide HOPE. In 2017 we were able to provide 5 suits. We were able to provide 2 more suits in February of 2018. In the first 9 months we were able to giveaway 7 suits, and we have kept going to see how many people we can help. As of March 2022 we have provided over 30 suits!
In August 2017 I decided to turn this into a Nonprofit Organization and got our incorporation. December 2017 I received IRS approval and are now a 501(c)(3) Nonprofit Organization called - The Crooked Life Foundation. It's work for certain, but I have the passion.
My pain became my passion. I was diagnosed with scoliosis at 12 years old. I watched and waited. My curve eventually progressed to over 40 degrees as an adult. I visited several orthopedic doctors throughout my journey who advised me that it was best to just live with it. I wasn't presented with any treatment options. I was very self-conscience, in pain, had a noticeable postural deformity, and feared for my future. I felt helpless for over 20 years! Then 3 years ago my life changed when I found a rehab based scoliosis treatment program in Kansas City. I had HOPE! It's such an amazing feeling, and I desire others to experience this same HOPE!
I am moving forward with a vision to help bring HOPE to people's lives. Hope is out there, but some people do not have the finances to access it. One at a time we will bring change! So, I move forward with passion, and as others see my vision and join in - we will begin to shine brighter and make a larger impact.
President of The Crooked Life Foundation
Marce Kuhns: President & Treasurer
Sarah Beaman: Vice-President
Helen Rice: Secretary